Why having a chronic condition makes you rethink your daily routine.

My cardiovascular condition is part of a wider problem, a rare genetic connective tissue disorder called Ehlers-Danlos syndrome (EDS). I have type 3. This means I don’t just have the heart problems, but also autonomic dysfunction, widespread pain, chronic fatigue, osteoarthritis in all my joints, spontaneous joint subluxing and dislocation, secondary Reynaud’s phenomenon, vascular spasm in my brain resulting in parkinsonisms, migraines and this list could go on forever so I am going to stop there.

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